Welcome To Eagles Fly Foundation Website
The Eagles Fly Foundation is a non-profit entity organized to increase awareness of and research towards a rare genetic disorder known as Inclusion Body Myopathy associated with Paget’s disease of the bone and Frontotemporal Dementia (IBMPFD). There is no treatment or cure for this fatal disorder that is caused by mutations in the VCP gene. This is an autosomal dominant disorder that is passed from generation to generation. Families have been identified around the world with this disease and research is ongoing to better understand the disease mechanisms in order to find a cure. The foundation has received a determination letter from the IRS classifying it as a 501(c)(3) organization making donations to the foundation tax deductible.
